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Leonard James

Polymyalgia.

Hi all,

I have recently been diagnosed with polymyalgia, and having got through the first agonising weeks am feeling a tad better.

I now have appointments for further x-rays and bone density tests, which I presume are a prelude to putting me on corticosteroids.

Has anybody any experience of the disease that they feel prepared to talk about?
Shaker

Not in my case, but I just wanted to say how sorry I am to hear you've been unwell, Leonard. I'm delighted you're feeling better now.
Grantus Maximus

Hi Len

Can't help with your enquiry about polymyalgia I'm afraid, but just wanted to give you my best wishes and hope these forums help take your mind off things from time to time.



GM
Leonard James

Grantus Maximus wrote:
Hi Len

Can't help with your enquiry about polymyalgia I'm afraid, but just wanted to give you my best wishes and hope these forums help take your mind off things from time to time.



GM

I can assure you GM that posting has been an enormous help in that sense. But I'm happy to say that the worst is behind me (I hope) and that the pain is well under control now with the use of anti-inflammation and pain-killing tablets.

Thank you both GM and Steve for your wishes.
Ketty

It's horrible to live with constant pain - debilitating and depressing.  Hope the medication continues to keep things under control and I'm sure living in a warmer climate must help. ((( Lennie )))
Lexilogio

No experience I'm afraid.

I've just done a quick internet check to see if it is another name for any other form, but it isn't.

This is a link to the British Guidelines issued by the British Society of Rheumatology

The European League against Rheumatism doesn't appear to have released anything as yet.

I hope you get the steroids soon.
Leonard James

Thank you Ket and Lexi ... the guidlines site was very interesting.

The two things that are annoying me most now are total lack of appetite (I have always been a very happy feeder), and the total lack of energy or inclination to do anything.

So I have to force myself to eat and do all the things that I previously did without thinking about it, and I am determined to overcome it.
gone

Re: Polymyalgia.

Leonard James wrote:
Hi all,

I have recently been diagnosed with polymyalgia, and having got through the first agonising weeks am feeling a tad better.

I now have appointments for further x-rays and bone density tests, which I presume are a prelude to putting me on corticosteroids.

Has anybody any experience of the disease that they feel prepared to talk about?


Oh you poor chap.  Thinking of you.
Ketty

Leonard James wrote:
Thank you Ket and Lexi ... the guidlines site was very interesting.

The two things that are annoying me most now are total lack of appetite (I have always been a very happy feeder), and the total lack of energy or inclination to do anything.

So I have to force myself to eat and do all the things that I previously did without thinking about it, and I am determined to overcome it.


Oh, Lennie!  Keep strong and determined my friend.  Echinacea can help your immune system (in case it's an auto-immune, thing) and sustained release Vit C can give you a boost too (anti-oxidant).  It's important that you keep yourself well-nourished, even if you don't feel like it.  ((( hug )))
Leonard James

Ketty wrote:
Leonard James wrote:
Thank you Ket and Lexi ... the guidlines site was very interesting.

The two things that are annoying me most now are total lack of appetite (I have always been a very happy feeder), and the total lack of energy or inclination to do anything.

So I have to force myself to eat and do all the things that I previously did without thinking about it, and I am determined to overcome it.


Oh, Lennie!  Keep strong and determined my friend.  Echinacea can help your immune system (in case it's an auto-immune, thing) and sustained release Vit C can give you a boost too (anti-oxidant).  It's important that you keep yourself well-nourished, even if you don't feel like it.  ((( hug )))

Hi Ket,

Thank you for the tips ... I shall follow up both of them after consulting the doc.

By an incredible coincidence I am just growing in my garden for the first time ever a variety of Echinacea, the Purple Cone Flower! If I believed in God I would attribute that to him, rather than coincidence!  
Ketty



He works in mysterious ways, my friend.  

cyberman

Leonard,

I'm really sorry to hear you are unwell. You have mentioned your determination to overcome it, and I know you to be a man of strong mind and determination (stubborn old git..?) so I'm sure you will succeed.
Leonard James

cyberman wrote:
Leonard,

I'm really sorry to hear you are unwell. You have mentioned your determination to overcome it, and I know you to be a man of strong mind and determination (stubborn old git..?) so I'm sure you will succeed.

Thanks, Cyber, and I acknowledge the epithet! In all my stubbornness I try never to hurt anyone, and reserve the unconditional right to express my point of view.
cyberman

[quote="Leonard James:56966"]
cyberman wrote:
In all my stubbornness I try never to hurt anyone, and reserve the unconditional right to express my point of view.


You're a model poster, Leonard, and I'm sure all would agree.
I can't imagine anyone ever trying to restrict your desire to express your point of view! Lord help 'em if they did.
gone

[quote="cyberman:56967"]
Leonard James wrote:
cyberman wrote:
In all my stubbornness I try never to hurt anyone, and reserve the unconditional right to express my point of view.


You're a model poster, Leonard, and I'm sure all would agree.
I can't imagine anyone ever trying to restrict your desire to express your point of view! Lord help 'em if they did.


Our Leonard is a role model of what a poster should be.
Leonard James

         

Only because the fires of youth have subsided somewhat!
gone

Leonard James wrote:
         

Only because the fires of youth have subsided somewhat!


Take a bow my dear, if our minds are as sharp as yours when we get to your VERY GREAT age we will be doing well.    There is an aged rellie of mine who could do with taking a leaf out of your book. Mind you thank goodness they are not computer literate, the idea of them posting on a forum is too awful to contemplate.  
Leonard James

Hi Roses,

Yes, it does surprise me that none of my companions of yesteryear seem to appear. They don't even have email, which is a shame for it is so much easier to keep in touch than by snail mail.
gone

Leonard James wrote:
Hi Roses,

Yes, it does surprise me that none of my companions of yesteryear seem to appear. They don't even have email, which is a shame for it is so much easier to keep in touch than by snail mail.


My Dad had bought a computer in his mid 70s and used it until a year before his death at 83. He had a lively mind almost until the end because he kept it stimulated.
Leonard James

floopowder wrote:
Leonard James wrote:
Hi Roses,

Yes, it does surprise me that none of my companions of yesteryear seem to appear. They don't even have email, which is a shame for it is so much easier to keep in touch than by snail mail.


My Dad had bought a computer in his mid 70s and used it until a year before his death at 83. He had a lively mind almost until the end because he kept it stimulated.

I am convinced that an active mind and a happy disposition are the best weapons to keep the scythe-man at bay!
gone

Leonard James wrote:
floopowder wrote:
Leonard James wrote:
Hi Roses,

Yes, it does surprise me that none of my companions of yesteryear seem to appear. They don't even have email, which is a shame for it is so much easier to keep in touch than by snail mail.


My Dad had bought a computer in his mid 70s and used it until a year before his death at 83. He had a lively mind almost until the end because he kept it stimulated.

I am convinced that an active mind and a happy disposition are the best weapons to keep the scythe-man at bay!


It doesn't always work of course, but generally speaking keeping your mind active is going to help a lot.

I know two ladies in the 90s who are as with it as they were years ago and still try to get out and about and do things. However I know very well an 87 years old who does nowt apart from driving the family crazy, and is losing it in consequence!
Leonard James

floopowder wrote:

It doesn't always work of course, but generally speaking keeping your mind active is going to help a lot.

I know two ladies in the 90s who are as with it as they were years ago and still try to get out and about and do things. However I know very well an 87 years old who does nowt apart from driving the family crazy, and is losing it in consequence!

True, Roses! I think it all boils down once again to being lucky or unlucky in the genetic lottery. I am very fortunate!

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